There has been no quilting and no blogging for over 10 days now. On Friday, September 1, my chiropractor suggested that I go online and do some research on fibromyalgia and chronic Lyme disease. I added low thyroid to the mix because I've been treated for that for the last 25 years, and probably have had the condition for more than 30 years.
I've been going to the chiropractor for more than a year. I'm making progress, but I am still in a huge amount of pain. The pain keeps moving, and joint pain does not do that.
And this is what I discovered. There is no question that I have fibromyalgia. I've probably got 90% or more of the symptoms. There is a possibility that because my low thyroid disease tests funny, that it is the reason that I've got fibromyalgia as well. I'm not so sure about the chronic Lyme, but the dates are right for my having been infected and not treated about 30 years ago.
I did have a dog in Arizona who brought ticks into the house on a regular basis. He mostly stayed in our yard, and I spent a lot of time in that yard as well. I could easily have been bitten.
The timing is right because 30 years ago my body began to do the slide down to where I am.
So, tomorrow I will begin the process to get an actual diagnosis on the fibromyalgia, and maybe on the chronic Lyme. And my plans right now are to ask to see a specialist who treats low thyroid disease and fibromyalgia. Because I know I've got those two.
I'd love to get back to quilting, but don't know when that will happen. Could happen on Thursday, and maybe won't. I've got the usual fatigue issues that fibromyalgia brings. And pain. A lot of pain.
This stuff isn't new. It has been going on for decades!
Sending love and ladybug hugs and prayers your way, Stella.
ReplyDeleteThere is a problem with your analysis of infection with Lyme 30 years ago, as even today there is probably no Lyme in Arizona, and 30 years ago, there certainly wasn't. However, if you do test positive for Lyme, I have more information for you.
ReplyDeleteAt least you have a direction now. Hope that you can get confirmation and then get started on a treatment that gets you started on feeling better.
ReplyDeleteHello Stella, I missed you on Leah's link parties. I am so sorry for you. But I think Lorraine is right about the Lyme, but you have had test I suppose by now, I am so sorry for you that you have such a pain and being so tired. Send me by email your address and I make you a beautiful card!
ReplyDeleteLove from Amsterdam
Maartje